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Saturday, July 19, 2008

Latent Lyme disease and exercise??? a link?

As I've stated on this site, my wife and I had Lyme, Babeosis and Erlichosis. We spent about 50 grand, two years and a lot of antibiotics to get back on our feet. I've been relatively OK.

HOWEVER, I started a new project around the house. My 20,000 gallon in ground pool is surrounded by patio blocks that aren't even close to level, in fact, they look more like the Tetons. Also, I'm getting water intrusion around the coping that is wrecking the bond beam. The quotes we got were about 15 grand or so to redo the deck. I figured that since I don't belong to a gym, it might be a good thing to get some manual labor in. My 13 year old son and I have been removing blocks, knocking off the mortar, regrading, hand tamping and resetting the stones. The results are looking great.

BUT - the other day, I came down with a 24 hour 'flu'. Part of it might be that the window fan was blowing on me. But I began to think. It seems that every time I get into a heavy project, I end up with a 'flu' lasting anywhere from a day to a week.

THEORY - It is pretty much of a fact that lyme buries itself deep in the tissue. I suppose that what might be happening is that the exercise is forcing blood down into the muscle which is causing a herxheimer effect (an effect where the killing of lyme disease results in a fever). This makes sense in that, when I think about it, it seems that there is a correlation between hard exercise and the onset of a fever. I don't keep a journal so I don't have hard data on this.

ACTIONS - My first thought is that I probably want to keep up with the pool. and other regular hard exercise. (1) I need to get it done and (2) It seems like it might be killing the Lyme that is buried deep. Also, I think I need to get back to regular appointments with my massuese. She does deep tissue massage which seems to have a similar effect.

Anyway, I'd appreciate anyone who has had similar experiences if you would chime in here.

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Friday, June 8, 2007

Medical Community takes years to diagnose teen.

You see these stories all the time. A person becomes ill and their quality of life deteriorates until their life is a shambles.

Quite often the symptoms are there but the diagnosis is not made.
"There were so many children coming in with juvenile rheumatoid arthritis,"
Jones said during a telephone interview. He later determined that while symptoms
were similar, often they stemmed from Lyme disease. "I developed a knack for
treating and understanding the disease."


The article does a pretty good job of outlining the problem and the current situation. Bucks County, our home county, is in the top three counties as far as Lyme cases.


York Dispatch - York teen suffers for years before Lyme disease diagnosed:

"No one believed her. They figured she was making it up for one reason
or another. She wanted attention. She wanted to skip school. She was lazy.
But those things weren't true. Nicole Lecrone wanted help. She wanted the pain to subside, the muscle aches, the sharp stabbing pains in her stomach."



Meanwhile, our illustrious representative in Harrisburg are sitting on legislation that could help those who are suffering from Lyme and other Tick Borne diseases. The article outlines some of the bills. Note that similar bills have been brought forward year after year to die in committee. You can help by reading up on the bills and contacting your state rep and senator. Ask them to support legislation to help those suffering from Lyme Disease.

There were bills that would protect doctors who are aggressivly treating Lyme. Currently these doctors live in fear of prosecution or losing their medical licenses.

Legislation: Three proposals addressing Lyme disease treatments and
education remain in state House and Senate committees. House Bill 798 and Senate
Bill 722 would establish a task force to study Lyme disease and related
maladies. The task force would comprise representatives of the state departments
of health, conservation and natural resources, and the Pennsylvania Game
Commission. The task force would monitor antibiotic therapies and misconduct
proceedings.


HB798 was referred March 19 to the Committee on Health and
Human Services; SB722 was referred April 2 to Banking and Insurance. A third
bill, Senate Bill 573, would provide Lyme disease education, prevention and
treatment.


Check out this proposed legislation and its status online at
www.legis.state.pa.us.

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